Book Launch: Why a Book about Mary Rose?
Books about grief, pregnancy and infant loss have already been written. Yet when I was a pregnant woman walking around in a daze of grief after a prenatal diagnosis of trisomy 18, I did not find comfort in books, the place where I have always found comfort. Other than Nancy Mayer-Whittington’s For the Love of Angela, no book was raw or honest enough. In my state of pregnancy-awaiting-death, I wanted truth. I wanted to know how I could survive carrying life and death inside me. I wanted someone to explain the madness of grief that lasted far longer than Mary Rose’s brief life. I wanted to know that my unborn baby wouldn’t suffer.
In my pregnancy I came up against people’s judgements and beliefs about pregnancies with life-limiting diagnoses and life support for newborns. I fought the system to birth my daughter at home and give her a quiet peaceful life. I prepared her body for burial on my own bed where we held her, where she died. In the aftermath of my grief, I came face to face with our culture’s ignorant ways in treating the bereaved. Many kind people comforted us, but once I left my house cocoon and reentered life, I felt silenced and judged for grieving. Some people think that I am angry, but I am not angry. I am writing to speak my truth. Grief can take a lifetime to process. Grief is also infused with joy, as we live again.
To get to that joy, we first need tender love, a way to process our grief (I chose art), and the truth that life and death are inextricably linked. They always were. They always will be. Babies sometimes die. Women sometimes miscarry. I write Mary Rose into a book and send her out into the world to comfort women facing pregnancy and infant loss. I write to support communities – real communities – that walk together through the joys and grief that comprise human experience. Mary Rose’s book is as raw as a pregnant mother buying a casket and planning a funeral. It is as real as breath and love.
Today White Flowers Press launches Walking the Labyrinth of My Heart: A Journey of Pregnancy, Grief and Infant Death. The numbers are staggering. One in four women miscarry. One million babies die in this country before their first birthday. We all know women who have had their pregnancy losses, but most of us continue to ignore them because they are uncomfortable. This book addresses the social awkwardness that we feel around death and grief. It addresses the grieving mother, but also the family and friends that surround her not knowing what to say.
Every page of this book was watered with my tears; I kept writing anyway. I did not walk my pregnancy alone, and I do not want anyone else to be alone in that sacred space. I had my mentor Cubby, my parents, my sister, my closest friends. A therapist. A few midwives. A homeopath and bereavement doula. A son. A husband. A priest and his wife. A shaman. And the blessed nuns who pray in their little rooms for this broken world. Not every woman has a midwife to accompany her to the scariest of doctors’ appointments. How long can my baby live? What do I do next? And so I write for my readers.
In her memoir The Chronology of Water, Lidia Yuknavitch ends her book with these words:
Listen I can see you. If you are like me. You do not deserve most of what has happened or will. But there is something I can offer you. Whoever you are. Out there. As lonely as it gets, you are not alone. There is another kind of love . . . . This book? It’s for you. It’s water I made a path through . . . . Come in . . .
Yuknavitch is talking about art. The art of words and books and many media. I agree that art is a gift, but the gift is also truth and an open loving heart that loves our vulnerable babies who are miscarried, born still or die soon after birth.
After my pregnancy I did research and found out the most important thing. If Mary Rose had lived, she would not have suffered. Why didn’t my doctors tell me that? I was so anxious in that unknowing. I intend for this book to clear up the blur of getting a life-limiting diagnosis during pregnancy, for it to be a companion as we walk through the fog of grief. You are not alone. Many women have gone before you, walking this path, since the beginning of our myths and stories. And those babies who were miscarried, born still or alive, who lived a minute or a day, their souls are perfect and the stories of their lives will heal our own grieving souls.
Today on the launch of Mary Rose’s book please share this blog post, if our work resonates with you.
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To purchase Walking the Labyrinth of My Heart: A Journey of Pregnancy, Grief and Infant Death please click on this link: